09/07/2017. European Reference Networks - it works!

by Krystyna Knypl July. 09, 2017 337 views

In February 2017 I participated in a seminar on European Reference Networks in Leuven. I listened very interesting lectures, among which one of the most interesting was the presentation of Prof.G. Jondeau.

He presented one of the 24 ERN thematic sections devoted to rare vascular diseases.

# 1 Seminar in Leuven. Prof. G. Jondeau during lecture

# 1 Seminar in Leuven. Prof. G. Jondeau during lecture

# 2 Reference medical centers in EU devoted vascular diseases

# 2 Reference medical centers in EU devoted vascular diseases

# 3 In conference also participated patients, one of them a young woman with congenital, rare lymphatic vessel disease. She told the story of her illness and also showed this slide.

# 3 In conference also participated patients, one of them a young woman with congenital, rare lymphatic vessel disease. She told the story of her illness and also showed this slide.

Less than half a year later on the Polish forum for doctors appeared a story about a baby born in a Polish family in London. The topic was written by one of the participants of the forum, let's call this lady Dr. Mary, who is a cousin of a sick child.

The baby was born with swelling of one leg, probably lymphatic. Dr. Mary asked members of this forum for advice and guidance on how to proceed.

# 3 Because I attended a conference in Leuven and got to know the ERN project, especially  excellent VASCERN network, I found on VASCERN website, that the best place to diagnose for a child is Saint George University Hospital in London.

# 3 Because I attended a conference in Leuven and got to know the ERN project, especially excellent VASCERN network, I found on VASCERN website, that the best place to diagnose for a child is Saint George University Hospital in London.

# 4 Print screen from internet forum for Polish doctors ( my nick on this forum is @spa, not @mimax2 as here).

# 4 Print screen from internet forum for Polish doctors ( my nick on this forum is @spa, not @mimax2 as here).

Today Dr. Mary reported that the baby just was referred to the Saint George Hospital :). The dream of quick diagnosis of new patients by ERN networks is starting to materialize :)

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